On the tip of my tongue - talking about Aphasia Titelbild

On the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

Von: Jonathan Hirons and Rob Edwards
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Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

Jonathan's Experience with Aphasia


1. Initial Incident:


In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.


2. Medical Emergency:

He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.



3. Impact on Daily Life:


- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.


4. Support from Family:

His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.



5. Progress Through Therapy:

With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.



6. Advocacy and Awareness:


- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.



Understanding Aphasia


Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.



Key Takeaways


- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.

Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.


Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.


This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.


For permissions or inquiries, please contact hello@buffalolounge.co.uk

© 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. For permissions or inquiries, please contact hello@buffalolounge.co.uk
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  • International Aphasia Awareness Campaign with Claire Bennington
    Sep 7 2025

    Send us a text

    International Aphasia Awareness Campaign with Claire Bennington

    In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with the Australian Aphasia Association since 2018, and discusses her PhD project, which focuses on co-designing a unified international Aphasia awareness campaign. The conversation covers the current fundraising initiatives, the challenges of raising awareness for Aphasia, and the ways listeners can get involved. Claire also highlights the importance of global collaboration and multi-language accessibility for the campaign materials aiming to make a significant impact on Aphasia awareness worldwide.

    00:00 Introduction to the Podcast and Guest
    01:24 Understanding Aphasia
    02:01 Claire Bennington's Background and Role
    03:47 Challenges and Activities of the Australian Aphasia Association
    06:19 Fundraising Efforts and Campaigns
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    17:29 Conclusion and How to Get Involved

    To donate to Claire's Just Giving page, click here:

    https://www.justgiving.com/campaign/qarc-uq-aphasia-awareness


    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    https://www.instagram.com/buffalolounge

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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  • Robert Baldock's Voice of Recovery, Music and Aphasia
    Aug 3 2025

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    Overcoming Aphasia: Robert Baldock’s Journey and Advocacy

    This episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting in acute aphasia and severe verbal dyspraxia. Robert shares his journey through his stroke, the challenges he faced with communication, and his path to recovery. He discusses his innovative use of technology and alternative communication methods, including a synthetic voice developed from his radio recordings. Additionally, Robert talks about his advocacy efforts for the reinstatement of the thrombectomy procedure in Scotland, demonstrating his resilience and commitment to helping others. For more information on strokes and aphasia, listeners are directed to several helpful resources.

    00:00 Introduction to Robert Baldock
    00:50 Understanding Aphasia
    01:33 Robert's Stroke Experience
    03:26 Life After Stroke
    07:09 Communication Challenges and Solutions
    08:43 Advocacy and Campaigning
    09:33 Conclusion and Resources

    For more information about Robert and Andy Fielding (AKA MC Zirconium) is on their website

    https://www.projectmoonbase.com

    Robert's original music can be found on his Band Camp website

    https://aleatorymusicsystems.bandcamp.com/music

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    https://www.instagram.com/buffalolounge

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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  • Life in the key of Aphasia - Graham Hall
    Jun 24 2025

    Send us a text

    Join us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him overcome challenges. Listen today! 😊 #Aphasia #MusicHealing #Podcast

    Living with Aphasia: A Journey Through Music and Recovery

    Rob Edwards and Jonathan Hirons discuss the impact of Aphasia following a stroke experienced by Graham 10 years ago. The podcast, titled 'On the Tip of My Tongue', complements a film about Aphasia made by Jonathan. Aphasia impairs language skills and affects 350,000 people in the UK, yet remains relatively unknown. Graham shares his journey of adapting to life post-stroke, highlighting his transition from performing with Opera North to creating music and lyrics to aid his recovery and raise awareness. The discussion underscores the therapeutic power of music, the struggle with word-finding, and the broader impact of Aphasia.

    00:00 A Life-Changing Stroke
    01:03 Introduction to the Podcast
    01:22 Understanding Aphasia
    01:59 Personal Journey with Aphasia
    03:20 Musical Career and Aphasia
    05:02 Creating Music with Aphasia
    07:48 Future Aspirations and Reflections
    11:49 Conclusion and Resources

    Graham's website: https://grahamhall.bandcamp.com/music


    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    https://www.instagram.com/buffalolounge

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

    Mehr anzeigen Weniger anzeigen
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