In this episode, host Hannah Trueblood Villani speaks with Lara Bloom, the CEO of the Ehlers-Danlos Society, an international nonprofit organization dedicated to patient support, scientific research, advocacy, and increasing awareness for the 13 types of EDS, & hypermobility spectrum disorder (HSD).

They discuss Lara's journey with Ehlers-Danlos Syndrome (EDS), her advocacy work, and the importance of community support. The conversation covers the challenges of living with a chronic illness, the significance of accurate diagnosis, and the role of personal experience in advocacy. Lara shares insights on the law of attraction, the impact of misinformation in health, and the importance of fundraising for research. The episode concludes with a discussion on the political landscape surrounding healthcare and the motivation to continue advocating for those affected by EDS.

FOLLOW LARA BLOOM:

www.larabloom.com

Instagram: @lara.bloom

FOLLOW THE EHLERS DANLOS SOCIETY:

www.ehlers-danlos.com

Instagram: @ehlers.danlos

• ROAD TO 2026 INFO HERE!

HELP HANNAH RAISE $29,029 for scientific research by clicking HERE!

• Learn more about research opportunities HERE!

FOLLOW HANNAH TRUEBLOOD VILLANI

Instagram: @hannahe_v

SUPPORT LOCAL RADIO! Thank you to WVLP 103.1 FM in Valparaiso for hosting this show! www.wvlp.org

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