RARE MAMAS RISING- EPISODE 55

Plugging Into the Rare Community

In this special Rare Disease Day episode of Rare Mamas Rising, Nikki McIntosh reads the chapter "Plugging Into the Rare Community" from her book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease and reflects on what Rare Disease Day has taught her as a rare disease mom. This heartfelt episode explores the power of the rare disease community, the importance of caregiver support, and why connection among rare moms can change the way we carry even the hardest seasons of rare disease parenting. Whether you are newly navigating a diagnosis or years into your caregiving journey, this episode offers encouragement, validation, and a reminder that no rare mama was meant to do this alone.

Links & Resources Mentioned:

For more info on Rare Disease Day, check out:

https://www.rarediseaseday.org

https://rarediseases.org

For more support and sisterhood, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below:

Amazon

Apple Books

Barnes & Noble

Bookshop.org

Books-A-Million

IndieBound

Indigo

Kobo

Porchlight

Book Info: www.raremamas.com/book

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

info@raremamas.com

PODCAST INFO

podcast@raremamas.com

RARE MAMAS RISING- EPISODE 54

Hoping Through the Holidays

Christmas is the season of hope. But hope can be complicated for rare disease parents navigating exhaustion, medical uncertainty, chronic stress, and the ache of unanswered prayers. In this episode of Rare Mamas Rising, we explore what hope really looks like for rare disease parents and caregivers during a season that can feel both beautiful and painfully complicated. This episode gently unpacks the realities of hoping in the hard: hope in the waiting, hope after disappointment, hope when you're exhausted, and hope when you're scared to try again. It offers reflections on why hope is an action we choose, how it keeps us moving in the world of medical parenting, and the surprising ways hope can transform us even before our circumstances change. For every rare caregiver navigating uncertainty or heaviness this time of year, this conversation creates space to reconnect with hope.

Links & Resources Mentioned:

For more thoughts on Hope, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below:

• Amazon
• Apple Books
• Barnes & Noble
• Bookshop.org
• Books-A-Million
• IndieBound
• Indigo
• Kobo
• Porchlight

Book Info: www.raremamas.com/book

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

info@raremamas.com

RARE MAMAS RISING- EPISODE 53

Rhythms of Rising and Recovering

As rare mamas, we're no strangers to effort. We plan, advocate, and persevere through every season. The calm seasons are fleeting, the storms arrive unannounced, and balance often feels impossible. So maybe it's time to stop waiting for life to slow down, and instead, learn to build recovery into the cracks and spaces of our real lives. In this episode, Nikki explores what it means to rest between the rising, to create a rhythm of recovery within the chaos, to stop pushing through every warning sign from our bodies, and to begin listening to what we truly need. Because maybe the goal was never perfect balance. Maybe it's learning to breathe in the middle of the unbalanced—to stop waiting for life to change, and instead, change how we move through it.

Links & Resources Mentioned:

Order the Rare Mamas book today at the links below:

• Amazon
• Apple Books
• Barnes & Noble
• Bookshop.org
• Books-A-Million
• IndieBound
• Indigo
• Kobo
• Porchlight

Book Info: www.raremamas.com/book

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

info@raremamas.com

PODCAST INFO

podcast@raremamas.com