Plugging Into the Rare Community
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Plugging Into the Rare Community
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RARE MAMAS RISING- EPISODE 55
Plugging Into the Rare Community
In this special Rare Disease Day episode of Rare Mamas Rising, Nikki McIntosh reads the chapter "Plugging Into the Rare Community" from her book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease and reflects on what Rare Disease Day has taught her as a rare disease mom. This heartfelt episode explores the power of the rare disease community, the importance of caregiver support, and why connection among rare moms can change the way we carry even the hardest seasons of rare disease parenting. Whether you are newly navigating a diagnosis or years into your caregiving journey, this episode offers encouragement, validation, and a reminder that no rare mama was meant to do this alone.
Links & Resources Mentioned:
For more info on Rare Disease Day, check out:
https://www.rarediseaseday.org
https://rarediseases.org
For more support and sisterhood, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below:
Amazon
Apple Books
Barnes & Noble
Bookshop.org
Books-A-Million
IndieBound
Indigo
Kobo
Porchlight
Book Info: www.raremamas.com/book
CONNECT WITH NIKKI
https://www.facebook.com/RareMamas1/
https://www.instagram.com/Rare_Mamas/
Website
https://raremamas.com/
info@raremamas.com
PODCAST INFO
podcast@raremamas.com
