Healthcare is the only place where the consumer is not in the middle of the decision-making. On the new episode of Patient to Purpose, we’re joined by Sabrina Hanna, b.sc (@CancerCollab) to talk about the reality of navigating the healthcare system as a patient advocate. From the “checkbox” culture of medical meetings to the wait lists for drug listings.

Coverage ≠ Access

Patient experience IS data

We need a 21st not 20th century lens

Resources:

The Cancer Collaborative

Rethinking how we define value in healthcare

Rethinking Health Technology Assessments

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#PatientToPurpose #HTA #PatientAdvocacy #LivedExperience

In this episode of Patient to Purpose, Erica & Stefan dive into the vaccine debate, misinformation, and the tension between science, politics, and public opinion. From the history of immunization to the lessons of COVID-19, they unpack why public health works best when it’s trusted, and what happens when evidence gets drowned out by emotion, algorithms, and ideology. A candid conversation about prevention, access to care, and the collective responsibility behind better health outcomes.

Resources:

Smallpox vaccine U.S.

History of mRNA

About the 1918 flu

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#PatientToPurpose #HealthPolicy #TrustScience #VaccinesWork #HealthcareForAll

In this episode we speak with Tim Cage and John Capecci who have been partners for 20 years in Living Proof Advocacy. Tim & John unpack the emotional, psychological, and identity shifts involved in deciding to go public with a lived health experience, especially in the context of invisible illness and stigma. The discussion also highlights cultural differences in advocacy across countries, the importance of patient-centric approaches in healthcare and pharma, and how individual stories bring clinical data and outcomes to life.

What’s your why? Six words to articulate why advocacy is for you.

Resources:

Living Proof Advocacy (Patient to Purpose listeners receive 10% off use code P2P10)

Writing to Change the World by Mary Pipher

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#PatientToPurpose #LivingProofAdvocacy #PatientAdvocacy #LivedExperience #StoryTellingForChange