When an individual living with ALS reaches the point of considering hospice care, the journey can feel overwhelming—for both patients and their families. In this episode of In the Passenger Seat, we sit down with Anne Marie Doyle from the Les Turner ALS Foundation to explore how their team provides specialized support during this critical transition. Whether you’re new to supporting ALS patients or a seasoned hospice provider, this conversation offers valuable insights and tools to help you deliver expert, patient-centered care when it matters most.

Here are some quick links to the resources discussed in today's episode:

• Email: supportservices@lesturnerals.org or education@lesturnerals.org
• Website: https://lesturnerals.org/
• My ALS Decision Tool™: https://lesturnerals.org/my-als-decision-tool/
• ALS Learning Series: https://lesturnerals.org/support-services/als-learning-series/
• Information Guides: https://lesturnerals.org/als-decision-tools-guides-and-webinars/
• Support Groups: https://lesturnerals.org/support-services/free-als-support-groups-online/
• Grants & Equipment Loans: https://lesturnerals.org/support-services/grant-programs-equipment-loans/

In this episode of In the Passenger Seat, we’re joined by Certified Child Life Specialists (CCLS) Rachael Miller and Allison Bush, who share how Child Life professionals support children and families in hospice care. Together, we explore what a CCLS does, how they help children navigate serious illness and loss, and how they collaborate with the interdisciplinary team to provide compassionate, developmentally appropriate care. You’ll hear about practical tools, common challenges, and the deeply rewarding moments that come with guiding young hearts through difficult times.

What is CAHPS, really — and why does it matter to you, the frontline hospice caregiver?

Shelley Cartwright, CEO of APEX Hospice & Palliative Care, joins us this episode to pull back the curtain on the CAHPS Hospice Survey. Whether you're a nurse, CNA, chaplain, social worker, or provider, this episode will help you understand how your everyday actions directly shape the patient and family experience — and how that experience is captured in the survey.

This isn’t about chasing scores — it’s about honoring the sacred work you already do. CAHPS just gives families a way to tell that story.