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Research to Real Life with Dr. Tonya Thomas

Research to Real Life with Dr. Tonya Thomas

Von: Dr. Tonya Thomas
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Hosted by Dr. Tonya Thomas, EdD, founder of The Rare Advocacy Institute, LLC, Research to Real Life is a podcast dedicated to translating published doctoral research on the psychosocial challenges of K-12 students with rare diseases into practical knowledge for busy parents, students, and educators. Each episode is approximately 20 minutes and draws directly from Dr. Thomas’s published doctoral research, Understanding the Psychosocial Challenges of K-12 Students with Rare Diseases in the United States. Because the research only fulfills its purpose when it reaches the people who need it most.

© 2026 The Rare Advocacy Institute, LLC. All Rights Reserved.
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  • Rare Disease and the Diagnostic Odyssey: The Journey to Diagnosis for K-12 Students

    Rare Disease and the Diagnostic Odyssey: The Journey to Diagnosis for K-12 Students
    Apr 29 2026

    In this episode Dr. Tonya Thomas, EdD explores the diagnostic odyssey experienced by K-12 students with rare diseases as documented in her published doctoral research, Understanding the Psychosocial Challenges of K-12 Students with Rare Diseases in the United States. This episode highlights the top key insights on the lengthy and often painful journey families face before receiving an accurate diagnosis and the profound psychosocial impact on students in the K-12 school setting. Visit The Rare Advocacy Institute, LLC at bridge-to-advocacy.lovable.app for research based resources and tools for students, families, and educators navigating rare disease.
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    17 Min.
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