Rare Disease and the Diagnostic Odyssey: The Journey to Diagnosis for K-12 Students Titelbild

Rare Disease and the Diagnostic Odyssey: The Journey to Diagnosis for K-12 Students

Rare Disease and the Diagnostic Odyssey: The Journey to Diagnosis for K-12 Students

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In this episode Dr. Tonya Thomas, EdD explores the diagnostic odyssey experienced by K-12 students with rare diseases as documented in her published doctoral research, Understanding the Psychosocial Challenges of K-12 Students with Rare Diseases in the United States. This episode highlights the top key insights on the lengthy and often painful journey families face before receiving an accurate diagnosis and the profound psychosocial impact on students in the K-12 school setting. Visit The Rare Advocacy Institute, LLC at bridge-to-advocacy.lovable.app for research based resources and tools for students, families, and educators navigating rare disease.

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