We have an exciting year ahead, and look forward to sharing it with you! Listen in as Hitomi Kubo shares in more detail, on what’s to come in 2025…

Feb - Roar For Rare! Share how you’re Roaring for CASK and all rare diseases, and tag @projectcask! Social frames in multiple languages can be found here:

https://projectcask.org/#cask-gene-rare-disease-day

March - Meet Dr. Mingshan Xue, lead researcher of the CASK gene replacement therapy, the most proven gene therapy technique currently applicable for CASK. More info on the study:

https://www.youtube.com/watch?v=bftS7quS8DU&t=10s

May - The Ultra Rare Collection - Ultra Rare Art to Cure an Ultra Rare Disease. Our 2nd Edition of this online and in-person art auction is back with a new theme - The Mother of All Art Shows - art about motherhood, caregiving, and love.

https://www.ultrararecollection.com/

July - CASK Gene Awareness Day; let’s celebrate our Liocorns and honor those who remain in our hearts.

Aug - Make A Splash For CASK! Our 2nd annual peer-to-peer community-wide fundraiser. Join us in raising funds for research and showcase our Liocorns’ love for water! Renée Roquet’s community fundraiser:

https://www.instagram.com/p/C_EdkDlSSf3Yxblx_mpyz5TGCGu0bkvSp56wJo0/

Oct - CASK Family & Science Conference - Coming together as a community to learn, connect and find inspiration.

REMINDERS:

Please register for Citizen Health + Project CASK (takes 3 minutes!):

https://www.citizen.health/partners/project-cask

Update your Rare-X surveys here:

https://rare-x.org/cask/

CASK seizure study:

https://www.instagram.com/p/DF2lwMBSqam/

Make sure to register with Project CASK to stay in the know for all things 2025

https://www.tfaforms.com/5104302

We look forward to a promising 2025 together!