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In this episode of the Seizure Turnaround podcast, poet and advocate Matina Alexis shares her profound journey of dealing with functional seizures, also known as PNES, and how writing became a crucial tool in her recovery. Matina discusses the challenging process of getting diagnosed, the traumatic events in her life, and her path to uncovering deeply repressed childhood traumas through therapy and trauma dreams. She also highlights the role of her poetic work, 'The Softest Blade,' in helping her navigate and articulate her pain, ultimately leading to personal growth and transformation. This episode provides valuable insights into the complexities of functional seizures and the healing power of creative expression.

Link to Matina’s book, The Softest Blade, below:

https://matinaalexis.com/books/the-softest-blade-the-heavy-the-half-way-and-the-healing-matina-alexis/B0FZY2C73R

Presented by Clinical Neuropsychologist and researcher, Dr Lana Higson.

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In this episode, Natalie shares her journey of living with functional seizures and the transformation that followed. Before developing seizures, Natalie struggled to manage motherhood, work, and her mental health. Her journey took a significant turn when she experienced her first seizure in a mental health clinic during a group session. Natalie describes the physical and emotional turmoil she faced and how she took a pragmatic approach and discovered effective ways to manage her seizures. She highlights the importance of building a supportive community, experimenting with different tools and tricks, and maintaining a hopeful mindset. Despite the challenges, her story is a testament to grit and self-advocacy.

Presented by Clinical Neuropsychologist and researcher, Dr Lana Higson.

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In this in-depth discussion, Natasha (pseudonym) shares her family's challenging journey surrounding her son Oscar's functional seizures, beginning from a playground incident at age 10 which led to years of medical uncertainty. Initially misdiagnosed as post-concussion syndrome, it took many seizure episodes and exhaustive testing before a neurologist identified Oscar's condition as functional seizures. Natasha elaborates on the emotional toll, the impact on family dynamics, finding the right neuropsychologist, and strategies that helped Oscar manage and reduce his episodes. She emphasizes the importance of acceptance, communication, and community support to cope with these challenges. Her candid account sheds light on the intersection of trauma, autism, and functional seizures, offering valuable insights and hope to other families facing similar issues.

Presented by Clinical Neuropsychologist and researcher, Dr Lana Higson.