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The Late Diagnosis Club

The Late Diagnosis Club

Von: Autistic Culture Institute
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The Late Diagnosis Club is a podcast by and for adults who found they were neurodivergent later-in-life. Hosted by Story Steward Dr. Angela Kingdon, this show features honest conversations with neurodivergent guests navigating the identity shock of late diagnosis or self-identification. Each episode explores neurodivergent traits through a cultural lens, debunks stereotypes, and offers solidarity for those processing family dynamics, unmasking, and reclaiming long-buried SPINs. Whether you’re self-identified or medically diagnosed, this club has been saving you a seat and helps you feel at home in your neurodivergent self.


🌈 Celebrate autistic voices with early access, ad-free listening, and our full archive at AutisticCulturePlus.com

🌐 Visit www.autisticculturepodcast.com

📲 Follow us on Instagram: @autisticculturepodcast

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  • How Julie Discovered Her Autism Through Burnout and Books

    How Julie Discovered Her Autism Through Burnout and Books
    Feb 20 2026
    In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Julie Farrell, a late-diagnosed Autistic and ADHD writer, activist, and co-founder of The Inklusion Guide, a resource dedicated to making literature events accessible to disabled people.Julie shares her slow, layered journey toward understanding her neurodivergence — from burnout, migraines, and chronic illness labels, to finding herself mirrored in Autistic writers like Katherine May, to sobbing through the documentary Seeing the Unseen and finally knowing in her bones.Together, Angela and Julie explore masking, shutdowns mislabelled as anxiety, CPTSD, creative identity, freelance work as nervous system regulation, and the relief of receiving a diagnosis in a supportive, affirming environment. They also talk about ADHD medication, menstrual cycle titration, EMDR therapy, and what it feels like to “precipitate out of the hot goo” and become solid for the first time.This episode is also about Autistic joy — about stars, navigation, grief, and how Julie’s late father taught her to look up at the night sky and find her way.🪑 AttendeesChair: Dr Angela Kingdon — Author, community-builder, and Autistic advocateGuest: Julie Farrell — Writer, activist, and late-diagnosed Autistic & ADHD womanYou: The Listener!🗒️ Meeting AgendaOpening remarks from the ChairMember introduction: Burnout, writing communities, and slow recognitionDiscussion: Masking, shutdowns, and anxiety misdiagnosisChronic illness labels, brain fog, and nervous system overwhelmSelf-identification, late ADHD discovery and medicationCreativity, rejection sensitivity, and publishing Someone Like MeKey learningsClub announcements🧾 Minutes from the Meeting1️⃣ Opening RemarksAngela introduces Julie as a writer whose work reclaims Autistic narrative and centres accessibility, creativity, and late discovery. The conversation begins with the power of anthologies — reading other Autistic women’s work and realising, “Oh. That wasn’t just me.”2️⃣ Member Introduction: Julie’s StoryJulie traces her recognition back to 2018, when she ran a co-writing group in Edinburgh and befriended an openly Autistic man who spoke about burnout cycles. At the time, she didn’t see herself in autism — she was high masking and had internalized generalized anxiety and fibromyalgia diagnoses.Reading Wintering by Catherine May and later reviewing the documentary Seeing the Unseen became turning points. She describes sobbing at the end of the film and knowing, finally, that she was Autistic.3️⃣ Discussion HighlightsMasking & shutdowns: Nonverbal shutdowns misinterpreted as panic attacksMisdiagnosis: Anxiety and fibromyalgia concealing Autistic burnoutBurnout at 30: Months unable to leave the sofa; repeated medical dismissalSelf-ID vs formal diagnosis: The emotional weight of bothBeing believed: “Are you telling me I’m not stupid?”ADHD discovery: Hyperactivity, career misalignment, and paid assessmentMedication: Titration and menstrual cycle adjustmentsPublishing: Invited to contribute to Someone Like MeGrief & stars: Writing about her father, navigation, and expansive belonging4️⃣ Key LearningsBurnout cycles can be mistaken for anxietyMasking can delay self-recognition for yearsDiagnosis can dissolve lifelong shameMedication can reshape creative capacityFreelance work can be nervous system careAutistic joy often lives in special interests📌 Notice BoardInkulsion GuideSomeone Like Me AnthologyJulie’s Website Wintering by Katherine May📣 Club Announcements🎧 The Late Diagnosis Club is available on Spotify, Apple Podcasts, and all major platforms.💬 Join our online meetups and community at latediagnosis.club.📌 Check the LDC Notice Board for Member Contributions💜 There is a small charge — but no one is turned away for lack of funds.🌈 Celebrate autistic voices with early access, ad-free listening, and our full archive at AutisticCulturePlus.com🌐 Visit www.autisticculturepodcast.com📲 Follow us on Instagram: @autisticculturepodcast🎙️ Executive Producers: Amy Burns, Anamaria B Call, Andrew Banner, Anna Goodson, Ashley Apelzin, Audrea Volker, Ben Coulson, Brian Churcek, Cappy Hamper, Carley Biblin, Charlene Deva, Chloe Cross, Clay Duhigg, Clayton Oliver, Danny Dunn, Daria Brown, David Garrido, Emily Burgess, Eric Crane, Erik Stenerud, Fiona Baker, Grace Norman, Helen Shaddock, Jaimie Collins, Jason Killian, Jen Unruh, Jennifer Carpenter, Julia Tretter, Kathie Watson-Gray, Kenneth Knowles, Kira Cotter, Kristine Lang, Kyle Raney, Llew P Williams, Laura Alvarado, Laura De Vito, Laura Provonsha, Lily George, Nelly Darmi, Nigel Rogers, Rachel Miller, Tim Scott, Tyler Kunz, Victoria Steed, Yanina Wood.🎧 Producers: AJ Knight, Bobby Simon, Da Kovac, Eleanor Collins, Emily Griffiths, Hannah Hughes, Jennifer Kemp, Jonas Fløde, Kate F, Katie N Benitez, Kendra Murphy, Lisa Dennys, Logan Wall, Louise Lomas, Melissa Nance, ...
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    1 Std.
  • How Helen Learned She Was Autistic After a Lifetime of Misdiagnosis

    How Helen Learned She Was Autistic After a Lifetime of Misdiagnosis
    Feb 13 2026
    In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Helen Shaddock, a multidisciplinary artist, writer, and PhD researcher whose work explores autism, eating distress, OCD, and healing through creativity.Helen was diagnosed with anorexia at 13 and spent the next 25 years moving through eating-disorder pathways that never fully explained her experience. It wasn’t until her late 30s — after years of treatment, physical injury, and burnout — that an occupational therapist recognised what others had missed: Helen was Autistic.Helen and Angela explore the long overlap between eating distress, OCD, and autism, how Autistic regulation was repeatedly misread as pathology, and how late diagnosis reframed decades of self-blame. Helen shares her experiences around interoception, stimming, routine, sensory regulation, and the difference between Autistic eating and eating disorder treatment.This episode is also about creative becoming — how art, writing, and storytelling can be tools for survival, meaning-making, and identity reconstruction. 🪑 AttendeesChair: Dr Angela Kingdon — Author, community-builder, and Autistic advocateGuest: Helen Shaddock — Autistic multidisciplinary artist, writer, and PhD researcherYou: The Listener!🗒️ Meeting AgendaOpening remarks from the ChairMember introduction: Autism missed across treatment pathwaysCBT, clinical harm, and misinterpretation of Autistic regulationAutistic eating vs eating disorder frameworksBurnout, grief, and late autism recognitionCreative becoming through art and storytellingKey learningsClub announcements🧾 Minutes from the Meeting1️⃣ Opening RemarksAngela welcomes Helen as a long-standing member of the LDC community and frames the conversation around storytelling, creativity, and late recognition. This meeting emphasises intimacy and pacing — meeting one another “one at a time,” in a way that feels distinctly Autistic.2️⃣ Member Introduction: Helen’s StoryHelen was diagnosed with anorexia at 13 and spent her adolescence and adulthood navigating eating-disorder treatment, CBT, and medical surveillance.Many Autistic traits, including routine, stimming, sensory sensitivity, and the need for predictability, were interpreted as pathology rather than regulation.She experienced chronic fatigue in early adolescence, missed significant periods of school, and was bullied. Later injuries, stress fractures, and physical complications were consistently attributed to anorexia, obscuring the role of autism and interoceptive differences.3️⃣ Discussion Highlights25 years missed: Autism identified at 38 after decades of eating-disorder treatmentMisinterpretation: Autistic stimming and regulation framed as calorie-burning or compulsionInteroception: Pain, hunger, and bladder signals go unnoticed until extremeRoutine & safety: The difference between Autistic eating and eating distressGrief: Mourning the support that could have existed earlierLanguage shift: Choosing “eating distress” over “eating disorder”Creative becoming: Identity as fluid, evolving, and reconstructed through artArtEd: Digital storytelling, visual diaries, and community zines4️⃣ Key LearningsEating distress can mask autism — and vice versaLate diagnosis can dissolve decades of self-blameAutistic regulation is often misunderstood as a disorderCreativity is not a luxury — it is a survival toolCommunity reduces isolation and restores dignity📌 Notice BoardArtED WebsiteHelen’s Website📣 Club Announcements🎧 The Late Diagnosis Club is available on Spotify, Apple Podcasts, and all major platforms.💬 Join our online meetups and community at latediagnosis.club.📌 Check the LDC Notice Board for Member Contributions💜 There is a small charge — but no one is turned away for lack of funds.🌈 Celebrate autistic voices with early access, ad-free listening, and our full archive at AutisticCulturePlus.com🌐 Visit www.autisticculturepodcast.com📲 Follow us on Instagram: @autisticculturepodcast🎙️ Executive Producers: Amy Burns, Anamaria B Call, Andrew Banner, Anna Goodson, Ashley Apelzin, Audrea Volker, Ben Coulson, Brian Churcek, Cappy Hamper, Carley Biblin, Charlene Deva, Chloe Cross, Clay Duhigg, Clayton Oliver, Danny Dunn, Daria Brown, David Garrido, Emily Burgess, Eric Crane, Erik Stenerud, Fiona Baker, Grace Norman, Helen Shaddock, Jaimie Collins, Jason Killian, Jen Unruh, Jennifer Carpenter, Julia Tretter, Kathie Watson-Gray, Kenneth Knowles, Kira Cotter, Kristine Lang, Kyle Raney, Llew P Williams, Laura Alvarado, Laura De Vito, Laura Provonsha, Lily George, Nelly Darmi, Nigel Rogers, Rachel Miller, Tim Scott, Tyler Kunz, Victoria Steed, Yanina Wood.🎧 Producers: AJ Knight, Bobby Simon, Da Kovac, Eleanor Collins, Emily Griffiths, Hannah Hughes, Jennifer Kemp, Jonas Fløde, Kate F, Katie N Benitez, Kendra Murphy, Lisa Dennys, Logan Wall, Louise Lomas, Melissa Nance, Nicola Owen, Rebecka Johansson, Sam Morris, ...
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    53 Min.
  • How Tara Survived Without Knowing She Was Autistic

    How Tara Survived Without Knowing She Was Autistic
    Feb 6 2026
    In this meeting of The Late Diagnosis Club, Dr Angela Kingdon welcomes Tara for one of the most difficult and important conversations the Club has held.⚠️ Content notice: This episode includes discussion of violence, sexual abuse, child harm, and coercive control. Listener discretion is strongly advised. Please pause or skip as needed and take care of yourself.Tara is a late-diagnosed Autistic woman, a mother, and a survivor of severe childhood abuse, abduction, and exploitation. She shares her story not for shock, but to illuminate how Autistic girls and women are uniquely vulnerable — especially when they grow up without protection, language, or recognition of their neurodivergence.Together, Angela and Tara explore survival as an Autistic trait, truth-telling as both a strength and a liability, vulnerability to cults and exploitative systems, and the long road to healing through prolonged exposure therapy. Tara’s story is harrowing — but it is also a testament to resilience, instinct, and the life-saving power of being believed.🪑 AttendeesChair: Dr Angela Kingdon — Author, community-builder, and Autistic advocateGuest: Tara — late-diagnosed Autistic woman, mother, and survivorYou: The Listener!🗒️ Meeting AgendaOpening remarks from the ChairMember introduction: Abuse, abduction, and survivalDiscussion: Autistic vulnerability and coercive control, misdiagnosis, and being labelled a liarCults, self-help movements, and exploitationProlonged exposure therapy and Late autism self-recognitionKey learningsClub announcements🧾 Minutes from the Meeting1️⃣ Opening RemarksAngela opens the meeting with a clear trigger warning and an explanation of the safeguards taken to ensure this conversation was shared safely and consensually. This episode is framed as difficult — but necessary — for Autistic people, particularly women and girls, whose experiences of abuse are often misunderstood or erased.2️⃣ Member Introduction: Tara’s StoryTara describes knowing she was different from early childhood — hyperlexic, highly intelligent, sensory-sensitive, and deeply compliant. As a CODA, she was placed in adult responsibilities far too young, acting as her mother’s ears while navigating an unsafe home environment.Family members responded to her Autistic traits with punishment and violence rather than protection. Tara was repeatedly locked away, beaten, and labelled with slurs — experiences that primed her for later exploitation.At 14, Tara was abducted by adults known to her family. She was held, tortured, and left for dead. No search party was launched. No justice followed. Tara survived through instinct, dissociation, and an extraordinary will to live.3️⃣ Discussion HighlightsAutistic vulnerability: How isolation, compliance, and literal trust increase riskSurvival instincts: Autism as a tool for endurance and escapeMisdiagnosis: Repeatedly labelled with personality disordersCults and self-help: Seeking safety and meaning in exploitative systemsProlonged exposure therapy: Ten years of structured trauma processingLate autism recognition: Finding language after decades of harmMotherhood: Love, rupture, and intergenerational neurodivergenceJustice: Living without it — and learning how to go on4️⃣ Key LearningsAutistic girls are especially vulnerable when their differences go unprotectedBeing articulate does not prevent exploitationTruth-telling can be punished in unsafe systemsMisdiagnosis can cause as much harm as no diagnosisSelf-diagnosis can be life-saving📣 Club Announcements🎧 The Late Diagnosis Club is available on Spotify, Apple Podcasts, and all major platforms.💬 Join our online meetups and community at latediagnosis.club.📌 Check the LDC Notice Board for Member Contributions💜 There is a small charge — but no one is turned away for lack of funds.🌈 Celebrate autistic voices with early access, ad-free listening, and our full archive at AutisticCulturePlus.com🌐 Visit www.autisticculturepodcast.com📲 Follow us on Instagram: @autisticculturepodcast🎙️ Executive Producers: Amy Burns, Anamaria B Call, Andrew Banner, Anna Goodson, Ashley Apelzin, Audrea Volker, Ben Coulson, Brian Churcek, Cappy Hamper, Carley Biblin, Charlene Deva, Chloe Cross, Clay Duhigg, Clayton Oliver, Danny Dunn, Daria Brown, David Garrido, Emily Burgess, Eric Crane, Erik Stenerud, Fiona Baker, Grace Norman, Helen Shaddock, Jaimie Collins, Jason Killian, Jen Unruh, Jennifer Carpenter, Julia Tretter, Kathie Watson-Gray, Kenneth Knowles, Kira Cotter, Kristine Lang, Kyle Raney, Llew P Williams, Laura Alvarado, Laura De Vito, Laura Provonsha, Lily George, Nelly Darmi, Nigel Rogers, Rachel Miller, Tim Scott, Tyler Kunz, Victoria Steed, Yanina Wood.🎧 Producers: AJ Knight, Bobby Simon, Da Kovac, Eleanor Collins, Emily Griffiths, Hannah Hughes, Jennifer Kemp, Jonas Fløde, Kate F, Katie N Benitez, Kendra Murphy, Lisa Dennys, Logan Wall, Louise Lomas, Melissa Nance, ...
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    1 Std. und 7 Min.
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