Join us on The Brain Camaraderie podcast as we explore the inspiring journey of Andy Stevenson, a former PGA golf professional turned rare disease advocate. Discover how Andy's personal experiences with Rett syndrome led him to co-found Reverse Rett, a UK charity dedicated to accelerating treatments for this devastating disorder. In this episode, Andy shares the emotional and logistical challenges faced by families, the power of community in fundraising, and the hope for a brighter future through gene therapy.

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Join us on The Brain Camaraderie podcast as we dive into the world of rare neurological diseases like Batten with Tracy Kirby, a nationally recognized advocate and nonprofit leader. Discover her journey from a temp agency to becoming a pivotal figure in family support and fundraising for rare diseases. Tracy shares her insights on the emotional and logistical challenges faced by families, the importance of community support, and the need for policy changes in newborn screening. This episode is a heartfelt exploration of resilience, advocacy, and the power of community. Tune in to be inspired and informed. Learn more: https://linktr.ee/thebraincamaraderie

In this episode, we delve into the groundbreaking insights of Dr. Alberto Espay, a leading neurologist and advocate for precision medicine. Dr. Espay challenges conventional beliefs in neurodegenerative diseases like Parkinson's and Alzheimer's, advocating for a shift from pathology-focused models to personalized, biomarker-based approaches. Through engaging discussions, he shares his vision for the future of disease research, emphasizing the importance of hypothesis-driven trials and the need for a paradigm shift in neuroscience. Join us as we explore these transformative ideas and their potential impact on patient care. If you’re interested in purchasing Brain Fables by Dr. Alberto Espay, you can find it through major booksellers such as Amazon, Barnes & Noble, or the publisher’s website!