The current episode is the third of our six-part series focused on the proposed diagnosis of “terminal anorexia nervosa.” My guest is Rosiel Elwyn (they/them/she), a PhD candidate at the Thompson Institute, Australia, who is studying the neurobiology of anorexia nervosa with a focus on the role of trauma and its effects on the glutamatergic system, the gut microbiome, and interoceptive function. Rosiel has lived with anorexia nervosa since childhood and currently works as a lived experience researcher and mental health consultant on a number of projects and advisory groups in eating disorders, suicide prevention, psychosis, trauma, and trauma-informed care, with a particular interest in co-design in these areas. With heart and mind, Rosiel shares with us hard earned insights on the proposed diagnosis of “terminal anorexia nervosa” and demonstrates brilliantly the unique and essential contributions that people with lived experience bring to field of eating disorders.

Elwyn, R. A lived experience response to the proposed diagnosis of terminal anorexia nervosa: learning from iatrogenic harm, ambivalence and enduring hope. J Eat Disord 11, 2 (2023). https://doi.org/10.1186/s40337-022-00729-0

Treem, J., Yager, J., Guadiani, J.L. AMA J Ethics. 2023;25(9):E703-709. doi: 10.1001/amajethics.2023.703