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In this powerful international episode of Narcolepsy Navigators, we sit down with Jayson, a PE teacher, endurance runner, and advocate living with Narcolepsy Type 1 with cataplexy in Taiwan.

Diagnosed as a teenager after repeatedly falling asleep in class, Jayson grew up navigating stigma, academic pressure, and deep misunderstandings — especially within a culture where performance and discipline are highly valued. Despite this, he has built a life centered around movement, self-awareness, and intentional boundaries, even running half marathons while managing narcolepsy.

Jayson shares how suppressing emotions to avoid cataplexy affected his identity, why journaling and therapy changed his life, and how he re-designed his career to protect his health. He also gives rare insight into Taiwan’s healthcare system, cultural nap norms, military service exemptions, and what true balance looks like when energy is limited.

This episode is honest, reflective, and deeply human — especially for anyone who has ever been told they “don’t look sick.”

What You’ll Learn in This Episode

• What it’s like being diagnosed with narcolepsy as a teen in Taiwan
• How teachers misread symptoms as laziness or lack of motivation
• The emotional cost of suppressing joy to avoid cataplexy
• Why Jayson chose flexible work over traditional career paths
• How exercise dramatically improves his sleep quality
• The role of journaling and therapy in emotional survival
• Cultural differences around naps and productivity
• How plant-based eating helps him manage daytime sleepiness
• Why narcolepsy is still not classified as a disability in Taiwan
• His honest answer to the “red button” question

Why This Episode Matters

Narcolepsy doesn’t look the same in every country — and Jayson’s story highlights how culture, healthcare systems, and expectations shape the lived experience of sleep disorders. This conversation challenges stereotypes and proves that strength doesn’t always look like pushing harder — sometimes it looks like resting smarter.

New Episode Out Now: https://www.napsforlife.com/podcast/episode/7f587a5c/s4e5-running-half-marathons-with-narcolepsy-jaysons-story-from-taiwan

About the Guest

Jayson is a PE teacher, endurance runner, and advocate from Taipei, Taiwan, living with Narcolepsy Type 1 with cataplexy. He uses movement, structure, and self-reflection to manage his condition and raise awareness across cultures.

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***If you find these symptoms relatable, please seek medical advice.***

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In this powerful episode of the Narcolepsy Navigators Podcast, hosts Kerly and Liz kick off a new advocacy-focused series spotlighting changemakers in the sleep disorder community.

They’re joined by Claire Wylds Wright, a UK-based advocate whose journey into advocacy began when her daughter was diagnosed with narcolepsy at a young age. What started as a search for answers quickly evolved into a mission to create change—leading Claire to become an author, mentor, and co-founder of the Sleep Consortium.

Claire shares what it really takes to advocate within healthcare systems, why listening is one of the most powerful tools in medicine, and how collaboration is shaping the future of sleep disorder research and treatment. The conversation also tackles misconceptions, healthcare disparities, and what upcoming treatments could mean for families worldwide.

This episode is a must-listen for advocates, caregivers, clinicians, and anyone passionate about better sleep health outcomes.

What You’ll Learn in This Episode:

• How advocacy often begins at the diagnosis stage
• Why patient voices matter in healthcare decision-making
• The mission behind the Sleep Consortium
• Differences between UK and US healthcare systems
• Racial disparities in sleep disorder diagnosis and care
• The future of narcolepsy and hypersomnia treatments
• Advice for new advocates entering the space

🎧 Listen now and join the movement shaping the future of sleep health.

Bio:

Claire is an award-winning author and patient advocate for people living with sleep disorders. After her daughter Mathilda developed Type1 Narcolepsy in 2010, her family moved from England to California to secure treatment and expert care for Mathilda under Professor Emmanuel Mignot at Stanford. Her book Waking Mathilda—A Memoir of Childhood Narcolepsy was published in 2017 and tells the story of parenting a young child with Narcolepsy and the impact of Mathilda’s diagnosis on her life and her family. She lives in Los Angeles with her son, daughter, and cat Mochi.

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Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

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www.napsforlife.com

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In this powerful and eye-opening conversation, 18-year-old Wendy shares what life is really like growing up with narcolepsy type 1 with cataplexy. Diagnosed at just 13 years old, Wendy opens up about sleep attacks in class, cataplexy triggered by laughter, hallucinations vivid enough to call the police, and the emotional toll of being a teenager who never gets to “just be a teenager.”

Through humor, honesty, and incredible resilience, Wendy talks about friendships, family, school accommodations, dating with narcolepsy, and what it means to walk into adulthood with a chronic sleep disorder — completely unmedicated.

Her story will break your heart, make you laugh, and leave you inspired.

In This Episode, We Discuss:

• Early symptoms and Wendy’s shockingly fast drop into REM (1.5 minutes!)
• Managing 10+ cataplexy episodes a day
• Being a teen with a hidden disability that classmates don’t understand
• The fear and reality of hallucinations
• Microsleeps, automatic behavior & writing dreams in school notes
• Why Wendy chose to stay unmedicated
• Accommodations in school and the struggle to be believed
• Navigating friendship, dating & self-worth
• Her dream of creating films that portray chronic illness accurately
• Advice for teens with narcolepsy who feel alone

New Episode Out Now

Link: https://www.napsforlife.com/podcast/episode/7e049ba0/s4e4-microsleeps-hallucinations-and-homework-wendys-daily-fight

Wendy is a passionate teen advocate and the creator of the narcolepsy awareness page @undyingnoir, where she designs educational infographics and shares her journey. She is beginning her college path in Film Production and hopes to create media that reflects real, misunderstood conditions like narcolepsy.

Follow Wendy:

Instagram: @undyingnoir

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Join our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch.
Visit: napsforlife.com

Support the show

Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

Follow and support Narcolepsy Navigators:

www.napsforlife.com

Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
TikTok: https://www.tiktok.com/@narcolepsynavigators
Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

***If you find these symptoms relatable, please seek medical advice.***