Lori & Shannon: When a ‘Small’ Cyst on the Brainstem Changes Everything
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Lori & Shannon: When a ‘Small’ Cyst on the Brainstem Changes Everything
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At age 12, Shannon went from a thriving athlete and musician to an angry, exhausted, and deeply unwell child almost overnight. What doctors brushed off as “attention-seeking,” “depression,” or even “drug-seeking” turned out to be something far more serious — a rare cyst on her brainstem causing immense pressure and life-altering symptoms.
In this episode, Lori shares the long, exhausting fight to be believed, the moment a lumbar puncture briefly gave her daughter’s life back, and how a neurosurgeon in Houston finally uncovered the truth: the cyst wasn’t on the pineal gland at all, but attached to the brainstem and pressing on critical structures, including the vagus nerve.
💡 Resources & Links:
Visit our website: pinealstories.com
Learn more about pineal cyst symptoms and advocacy
Share your story or contact us: pineal.stories@gmail.com
🎵 Credits:
Music: "What I Waited For" by Kikoru – Licensed via Epidemic Sound
📅 New episodes drop every Tuesday
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