What happens when you finally get the diagnosis that explains your whole life… and what doesn’t it change at all?

In this powerful episode of ListenABLE, Angus sits down with disability advocate and podcaster Kelly Berger, who shares her journey living with an ultra-rare form of congenital muscular dystrophy, Collagen 6. After years of misdiagnosis, Kelly received her genetic confirmation as an adult, a moment that brought clarity, community and a new sense of direction, without changing who she fundamentally is.

Kelly speaks candidly about the emotional weight of diagnosis, navigating healthcare systems, building community, and what real accessibility actually looks like in daily life. From the realities of infrastructure in the US to the gaps between performative inclusion and genuine integration, this conversation goes well beyond awareness and into what meaningful change requires.

We also dive into Kelly’s podcast 'Wheel Talk', her advocacy work, and how she’s helping reshape how disability, rare disease and identity are spoken about in public spaces.

This is a conversation about resilience, identity, leadership and how visibility changes everything.

• Living with Collagen 6 congenital muscular dystrophy

• The emotional impact of finally receiving a genetic diagnosis

• Rare disease advocacy and disability representation

• Accessibility in infrastructure and public spaces

• Navigating healthcare systems and misdiagnosis

• Disability identity and pride

• Building community with and without disability

• Language, inclusion and allyship

• Performative vs meaningful disability representation

• Creating podcasts within the disability community

• Why visibility matters

Kelly Berger is a disability advocate, podcaster and rare disease community leader living with Collagen 6 congenital muscular dystrophy. She is the co-host of Wheel Talk, a podcast exploring disability, identity and lived experience through honest, accessible conversations. Kelly works actively in advocacy, accessibility awareness and rare disease representation.

ListenABLE is a podcast created to amplify disability voices, challenge stereotypes and explore what inclusion actually looks like in practice. Hosted by Angus O’Loughlin alongside Dylan Alcott, the show brings real stories, lived experience and meaningful conversations into the mainstream.

Podcast: Wheel Talk with Kelly and Averyhttps://www.instagram.com/thewheeltalkpodcast/

Episode out Tuesday!

In this episode, Elizabeth Wright shares her journey from being a Paralympic swimmer to becoming a sports journalist. She discusses the challenges and triumphs of her career, the importance of representation in media, and her personal experiences with disability. Elizabeth emphasises the need for more coverage of Paralympic sports and the significance of embracing one's identity and pride in the face of ableism. The conversation highlights the evolving landscape of disability representation in journalism and the importance of community support.

Connect with Elizabeth

Instagram: https://www.instagram.com/elizabethlwright/?hl=en

LinkedIn: https://www.linkedin.com/in/elizabeth-wright-ply-300610129/

Website: http://www.elizabethwright.net/

What we cover:

• Elizabeth Wright transitioned from Paralympic swimmer to sports journalist.
• She emphasizes the need for more representation of disabled individuals in media.
• The Sydney 2000 Paralympics were a turning point for public support of para sports.
• Elizabeth faced challenges in her identity after retiring from swimming.
• She found empowerment through photography and art.
• Living with a disability requires daily practice of self-acceptance.
• Elizabeth advocates for more coverage of Paralympic sports.
• She reflects on the ableist perceptions in society.
• The importance of community pride in disability is highlighted.
• Elizabeth aims to inspire more disabled individuals to pursue journalism.

Chapters

00:00 Introduction and Background

02:58 Elizabeth Wright's Journey in Sports Journalism

05:51 Reflections on the Paralympic Games

09:05 Life After Competitive Swimming

11:51 Exploring Identity Through Art and Photography

14:54 Understanding Disability and Personal Experience

21:19 The Journey of Adaptation

22:34 Prosthetics: Tools of Empowerment

26:54 Disability Pride: A Daily Practice

31:10 The Future of Disability Representation in Journalism

33:43 Confronting Ableism: Personal Experiences and Growth

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