Keep It Science | Rare Diseases Don't Come Alone Titelbild

Keep It Science | Rare Diseases Don't Come Alone

Keep It Science | Rare Diseases Don't Come Alone

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Rare diseases rarely come alone.In this episode, we uncover how secondary diseases, infections, and treatment side effects often become as life-changing as the rare diseases themselves.🎧 Hosted by Dr Elisabeth Kugler, this discussion brings together two experts who live and lead in the world of rare conditions — exploring challenges, science, and the human stories behind them.👩‍⚕️ Guests:Sue Farrington• President, ‪@FESCAscleroderma‬ • Chair, ‪@PIF-PatientInformationForum‬ (PiF)• Co-Chair, RAIRDA (Rare Autoimmune Rheumatic Disease Alliance)• Chief Executive, ‪@WeAreSRUK‬ Scleroderma & Raynaud’s UK (SRUK)Dr Jesús Zurdo• Director, Ara Biosciences• #Leukaemia Survivor & Patient Advocate• Non-Executive Director, Telomere Therapeutics• Expert Jury Member, EIC Accelerator Programme

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