Hope in Focus Podcast Titelbild

Hope in Focus Podcast

Hope in Focus Podcast

Von: Hope in Focus
Jetzt kostenlos hören, ohne Abo

Über diesen Titel

 The Hope in Focus Podcast, hosted by Ben Shaberman, brings monthly stories and insights to the Leber congenital amaurosis (LCA) and inherited retinal disease (IRD) community. Together, we discuss personal stories, research and scientific updates—including gene therapy and drug development—tools and resources that support accessibility and independence, and insights to help families better understand early-onset vision loss. Hope in Focus is dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and IRDs.All rights reserved
Folgen
  • Hope in Focus Podcast | Episode 7 - Shannon Boye: Founding Atsena Therapeutics & Advancing LCA1/XLRS

    Hope in Focus Podcast | Episode 7 - Shannon Boye: Founding Atsena Therapeutics & Advancing LCA1/XLRS
    Feb 11 2026
    Dr. Shannon Boye is the co-founder and Chief Scientific Officer of Atsena Therapeutics, a gene therapy company advancing a treatment for LCA1 (GUCY2D), with a Phase 3 clinical trial coming soon. She is also a professor at the University of Florida, where she serves as Chief of the Division of Cellular and Molecular Therapy in the Department of Pediatrics and runs her own gene therapy research lab. With more than 20 years of experience in the field, Shannon joins us to share the story of her scientific journey—how she got started in research, her experiences working with big pharma, and what ultimately led her to co-found Atsena Therapeutics. She also discusses the Phase 1/2 clinical trial results for Atsena’s programs in LCA1 and X-linked retinoschisis (XLRS), shares powerful stories about patients, and explains how organizations like Hope in Focus help connect biotech companies with the patient community and build meaningful, collaborative relationships.
    Mehr anzeigen Weniger anzeigen
    37 Min.
  • Hope in Focus Podcast | Episode 6 - Brett Devloo: Stay on the Board

    Hope in Focus Podcast | Episode 6 - Brett Devloo: Stay on the Board
    Jan 16 2026
    Joining Ben Shaberman is Brett Devloo—blind skateboarder, creative force, and living proof that identity doesn’t disappear when vision does. After suddenly losing his sight to Leber’s Hereditary Optic Neuropathy (LHON), Brett was forced to reimagine who he was and what his future could be. In this episode, Brett reflects on losing his vision and how skateboarding became a place of familiarity and grounding, helping him navigate a world that had suddenly changed—alongside the friends and community who helped shape who he is today. Brett also talks about his upcoming documentary premiering in Canada and the mission behind his clothing brand. At the heart of it all is Brett’s message: “Stay on the board. End on the board. No matter what board you’re on."
    Mehr anzeigen Weniger anzeigen
    40 Min.
  • Hope in Focus Podcast | Part 2: Life with a Guide Dog – Independence, Confidence, and Companionship

    Hope in Focus Podcast | Part 2: Life with a Guide Dog – Independence, Confidence, and Companionship
    Dec 19 2025
    Join Ben Shaberman as he speaks with Nicolai Priebe and Eric Brinkman about the profound impact their guide dogs, Winsome and Charlie, have had on their daily lives. Nic shares how Winsome has given him increased confidence, independence, and motivation to go out more, while also serving as a helpful social bridge in public settings. Eric reflects on Charlie’s loyalty, reliability, and ability to help him navigate the complexities of city life, sharing humorous and memorable moments that highlight the dog’s intelligence and awareness. Both Nicolai and Eric emphasize the emotional bond they share with their guide dogs. Beyond navigation, these companions provide comfort, emotional support, and joy, offering a loving presence at the end of the day or during challenging moments. This episode highlights the extraordinary role guide dogs play, combining independence, safety, and companionship for those who rely on them.
    Mehr anzeigen Weniger anzeigen
    35 Min.
Noch keine Rezensionen vorhanden