What do you do when your child is diagnosed with a condition so rare that only nine other kids in the world have it — and there's no playbook?

Today's guest, Kasey Walsh, lived that reality. After her daughter Robbie was diagnosed with a rare form of hereditary spastic paraplegia at just two years old, Kasey refused to sit on the sidelines. She bought Neuroscience for Dummies, taught herself genetics, co-founded a nonprofit, and connected with researchers at Boston Children's Hospital — all while raising two kids.

Now she's the Founder & CEO of Winsights, a groundbreaking patient-powered platform using AI to turn real family experiences into research-grade evidence for rare disease communities.

In this episode, we talk about:

-The moment that took her breath away — and how she found the strength to keep going
-Why families often have to connect the dots that the medical system misses
-How she found her voice in rooms full of experts
-What she's building with Winsights and why it matters for every rare disease family
-Her advice for anyone facing something unexpected: don't say "why me" — say "plot twist"

Timestamps:
00:00 — Intro
00:30 — Meet Kasey Walsh
02:16 — The diagnosis that changed everything
04:43 — Navigating the early days as a special needs mom
05:32 — Starting a nonprofit & finding other families
09:16 — Buying Neuroscience for Dummies — the moment she took control
12:16 — What is Winsights? Turning anecdotes into evidence
14:59 — Finding her voice in rooms full of experts
16:28 — Advice for anyone afraid to advocate for themselves
19:36 — "Don't say why me — say plot twist"
20:09 — Where to connect with Kasey & learn about Winsights

Connect with Kasey:
Winsights: https://winsights.life Website: https://kaseywalsh.com

Connect with Jennie:
Podcast IG: @girlwhynotyou_
Website: https://girlwhynotyou.com Email: mailto:podcast@jennieblackwood.com

#raredisease #patientadvocacy #momentrepreneur #healthtech #winsights #kaseywalsh #hereditaryspasticparaplegia #caregiver #AIinhealthcare #rarediseaseresearch #womeninbusiness #girlwhynotyou #jennieblackwood #podcast #femalefounder

You're posting. You're showing up. You're doing all the "right" things — so why does it still feel like you're running in place?

Here's the truth nobody wants to hear: the thing holding you back probably isn't your strategy. It's you.

In this episode, I sit down with Leanna de Bellevue — a single mom who was making $80/hour doing massage, got told her job was disappearing overnight, and said "OK, I'll figure it out." She taught herself marketing from a Google search, built a six-figure agency from scratch with zero budget, scaled it across 17 countries for 15 years, and then sold it for over asking in 10 days flat.

Now she helps entrepreneurs uncover the blind spots they can't see on their own — and 85-90% of the time, the real problem isn't systems or marketing. It's mindset.

We're talking about:

The "Whisper Theory" — why ignoring your gut always costs you more later
Why imposter syndrome gets LOUDER at every new level (yes, even after you "make it")
The one free thing you can do today to find your biggest blind spot
Why the promises you keep breaking are always the ones you make to yourself
How accountability — real, uncomfortable accountability — changes everything

If you're stuck and you've tried everything, this one's going to hit different.

Connect with Leanna: @debellevueconsulting | debellevueconsulting.com

What happens when you stop waiting for someone else and just go? In this episode, Jennie Blackwood sits down with Charlotte Lilly, founder of The Retreat Co, who turned a spontaneous solo yoga retreat in Cuba into a thriving business creating transformative travel experiences for women. Charlotte shares how that one trip gave her a confidence she didn't know she needed, why the scariest part is always saying yes, and what she sees happen when women finally stop waiting to feel ready. Whether you're dreaming about starting a business, booking a solo adventure, or just taking that first scary step — this episode is your sign. Just go.

Guest: Charlotte Lily, Founder of The Retreat Co

Website: theretreat.company

Instagram: @_theretreatcompany