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Chronically Complex

Chronically Complex

Von: #MEAction
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If you're new to myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), we're here to tell you that you are not alone. There are millions of others like you. At #MEAction, our mission is to advocate for people with ME to raise awareness, educate, and fight for better access, better treatments, and ultimately a cure. Whether you're new to this disease or you've been living with it for decades, there's something here for you. We're your hosts, Steven Molony and Jaime Seltzer. Steven is an actor, writer, and filmmaker who makes all of #MEAction's videos and provides lots of voiceover as well. He is an ally to people with ME, Long COVID, and other chronic illnesses. Jaime is #MEAction's director of scientific and medical outreach, and she does research at Stanford University on ME and other complex chronic diseases. She is a person living with ME, and ME runs in her family with both her mother and sister affected. We'll be interviewing some of the most influential voices in ME/CFS and Long COVID, discussing books and articles on complex chronic disease; having candid chats about life with ME; #MillionsMissing and what it means to #StopRestPace; disability activism and advocacy; art and music from disabled artists you love; and so much more. If you're looking for an outlet on the road of chronic illness, you've come to the right place.2022 Wissenschaft
  • The Pillow Writers
    Nov 22 2024

    The Pillow Writers are an international ME/CFS writing group. They are a very friendly online group that meets to share thoughts and feelings on any topic, including, but not limited to, experience of chronic illness. They encourage a wide range of writing and have several different types of meeting each with a different emphasis. Meetings take place on Sundays, Mondays, Thursdays and Wednesdays. Click here for more details.

    Steven and Jaime sit down with Pillow Writers, Bobbi Ausubel, Ann Greenberger, and Laila Solaris to discuss the group's first anthology, Near-Life Experiences. This episode also includes readings by the guests, information on how to get involved with the group, their process as writers, and so much more.

    Pillow Writers Anthology 1: Near-Life Experiences is available now at Amazon in e-book, print, and audiobook formats. All proceeds from the sale of this book go to #MEAction.

    Free Giveaway!
    One lucky winner will receive a free paperback copy of the book (limited to US, UK, Germany, France, Japan, Canada, and Italy), and another winner will receive a free copy of the audiobook (limited to US & UK).

    To enter:

    • Listen to the episode
    • Email podcast@meaction.net by December 15th with "Pillow Writers Giveaway" as the subject heading.
    • Please indicate whether you'd prefer the audiobook, paperback, or either version.
    • Please include your name, and if your preference is for the paperback, please list your home address as well so we can have it delivered to the winner.
    The deadline for entries is December 15th. The winners will be selected the next day.
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    1 Std.
  • Cynthia Adinig
    Mar 7 2023

    Cynthia Adinig is a marketing specialist turned Long COVID advocate. She is the co-founder of BIPOC Equity Agency which is a diversity, equity, and inclusion agency with a focus on healthcare, policy, and research. She is a board member of SolveME, and a steering member of the Long COVID Alliance. She has testified on Capitol Hill on Long COVID and racism, and has been featured in TIME, The Washington Post, USA Today, and NBC News among others. Cynthia discusses her journey with Long COVID, her life in advocacy, and the work she's doing with BIPOC Equity Agency.

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    1 Std. und 3 Min.
  • David Tuller
    Jan 10 2023

    David Tuller obtained his Doctorate in public health from UC Berkeley. He is a senior fellow in public health and journalism at UC Berkeley's Center for Global Public Health.

    He was a reporter and editor for ten years at The San Francisco Chronicle, and served as health editor at Salon. He has also written articles about public health and medical issues for The New York Times and the policy journal Health Affairs.

    Since 2015, he has been investigating scientific, methodological, and ethical problems with research on myalgic encephalomyelitis/chronic fatigue syndrome. His ongoing series on this issue, Trial By Error, can be found on Virology Blog, the science site hosted by Vincent Racaniello, a microbiology professor at Columbia University.

    This episode concludes season one of Chronically Complex. We'll be off in the month of February while we make some improvements to the show. If you have any suggestions you'd like us to consider, send us an email at podcast@meaction.net. We look forward to continuing the conversation in March!

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    1 Std. und 5 Min.
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