We will kick off with the basics: what pica means, how to say it and why it can help to name what’s going on. Families often tell us they worry that when their relative transitions from the family home, their concerns about pica won’t be taken seriously or that other people will misunderstand the risks. So the panel talk about how recognising pica can support clearer planning, safer support and conversations with services.

Our panel of experts is:

Viv Cooper – family carer with lived experience of pica

Kate Sanger – family carer with lived experience of pica

Linda Hume – Registered Nurse for People with Learning Disabilities

Peter Baker – Senior Lecturer, Tizard Centre, University of Kent

Resources mentioned in this episode:

PICA Resource

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We welcome Claire Lightly from Bodysense Education for an open, honest and practical conversation about puberty and sexual expression.

We discuss real questions from the CBF Family Carer Email Network and explore some of the issues you might feel least able to talk about.

Content note: This episode discusses adult themes such as masturbation in an educational and supportive context.

Resources mentioned in this episode:

Addressing sexualised behaviours in schools and colleges

Addressing Sexualised Behaviour in SEND Schools and Colleges: A Dignif

Bodysense Education - where Claire works!

Home - Bodysense Education

Deluxe Condom Training model

Deluxe Condom Training Model, Beige | Health Edco Resources

Ejaculating dildos - this link takes you to an online sex shop

Ejaculating Dildos | Ultimate Sensual Experience | Lovehoney UK

Easy on the I

Image Bank - Learning Disability Service

Learn and thrive

Learn and Thrive | Charity | Educational Resources for Down's Syndrome

NSPCC Navigating puberty - lots of free widget symbols

Navigating puberty and sexual development | NSPCC Learning

Downs Syndrome Association

Relationships & Sex Education - Downs Syndrome Association

Supported Loving Toolkit

Choice Support | Supported Loving toolkit

Things Tom/Ellie likes

Things Tom Likes | Jessica Kingsley Publishers - UK

Things Ellie Likes | Jessica Kingsley Publishers - UK

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Our chat with Luke Clements, Cerebra Professor of Law continues, looking at transition when your young person is funded by NHS Continuing Healthcare and what to do if you suspect some iffy decision making is taking place.

Tell us what you think and suggest ideas for future episodes here

Links to the documents mentioned in the episode:

Mental Capacity Act Code of Practice

Disabled Children: a legal handbook

Cerebra Accessing Public Services Toolkit

Luke Clements ‘resources’ page

Template letters Cerebra

National framework for NHS continuing healthcare and NHS-funded nursing care (2022)

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