Call on you to say
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Some of things I have been struggling with is talking, if you listen to my podcast it’s a struggle, where I didn’t have a struggle before, now I do. Swallowing, I choke a lot, eating, I am allergic to gluten and I don’t have an appetite half the time, but I still eat. My heart beats fast. My lungs can’t expand, so I am not getting enough oxygen and it’s hard for me to breathe. I black out or pass out, I get extremely hot or very cold. I am in pain that can’t even be measured on a scale. My vision goes dark or very blurry. I have very bad migraines that can last for days. Loosing my voice has been reoccurring, when I walk it’s like carrying bricks. When I breathe it’s many bricks on my chest or a very heavy weight. I either itch, have pins and needles pain or sharp or stabbing pan. I get so stiff, I can barely walk. Many wonder how I live my life. Well I still work and do many things. I am not going to let the illness win, but that doesn’t mean it looks easy. Call on you to say, is I don’t hate being around people, but I don’t have much energy left in me. I can sleep for days and I am still tired. I conserve my energy, I take naps but still doesn’t change how tired I am. This isn’t a normal tiredness of a long day of work. I am drained. I am weak, not mentally, just physically. I drop things, I struggle opening things. Every aspect in my life has become a struggle. I am very .thankful for support, I truly appreciate it. I just wish many would understand this isn’t for sympathy or it’s made up. This is the nightmare I am living every day. I might be dealing with Myasthenia Gravis, where my nervous system and muscles don’t communicate with each other
