In this episode of the Brain & Life podcast, co-host Dr. Katy Peters speaks with advocate and author Lori Jones about growing up in a family affected by Huntington's disease (HD), reflecting on stigma, isolation, caregiving, and the inspiration behind her memoir, Spared: A Memoir of Risk and Resolve. Dr. Peters is then joined by Dr. Katie Moore, assistant professor of neurology at Duke University Medical Center, who explains what Huntington's disease is and how genetic testing can impact individuals and families living with HD.

Additional Resources

Lori Jones

What is Huntington's Disease?

Promising Therapies May Help Huntington's Disease

Brain & Life Podcast Episodes on These Topics

Author Tanita Allen on Existing with Huntington's Disease

Rare Thoughts on a Rarer Neurologic Condition

We Are Brave Together with Jessica Patay

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at BLpodcast@brainandlife.org

Social Media

Guests: Lori Jones @lorijoneswrites; Dr. Katie Moore @DukeNeuroRes

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by musical legend Gloria Gaynor. Gloria talks about her journey in music and opens up about living with a spinal cord injury (SCI), undergoing surgery, and navigating the long road to recovery. She shares what the experience taught her about resilience and adapting when life doesn't go as planned. Next, Dr. Correa is once again joined by Dr. Shelly Hsieh, attending physician and Assistant Professor, Physical Medicine and Rehabilitation at Montefiore Einstein. Dr. Hsieh dives further into the multifaceted approach to rehabilitation for spinal cord injuries and the lifestyle factors that support healing.

Additional Resources

How Spinal Surgery Helped Gloria Gaynor Beat Chronic Pain and Return to the Stage

What is Spinal Cord Injury?

HEP2go Rehabilitation

Brain & Life Podcast Episodes on These Topics

Answering Your Spinal Cord Injury Questions with Dr. Shelly Hsieh

"Roll with Cole & Charisma" On Building a Life Together as an Interabled Couple

How Disability Advocate Wesley Hamilton Became Empowered by Adversity

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at BLpodcast@brainandlife.org

Social Media

Guests: Gloria Gaynor @gloriagaynor ; Dr. Shelly Hsieh @MontefioreHealthSystem

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by Dr. Emmanuelle Waubant, professor of neurology at UCSF and Director of the UCSF Regional Pediatric Multiple Sclerosis Center. Together, they explore how diet, microbiome, and environmental factors influence the progression of multiple sclerosis, with a special focus on pediatric cases. Dr. Waubant also discusses the role of dietary patterns and vitamin D and highlights how emotional well-being and physical activity can impact disease outcomes.

Additional Resources

Expert Insights and Practical Tips for Managing Multiple Sclerosis

How Ultra-processed Foods Can Have a Negative Effect on Brain Health

Nutrition for kids: Guidelines for a healthy diet

Brain & Life Podcast Episodes on These Topics

Advocating for a Multiple Sclerosis Diagnosis with Comedian Kellye Howard

Embracing Each Day with Author and MS Advocate Lilibet Snellings Kyte

Voices from the Multiple Sclerosis Community

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at BLpodcast@brainandlife.org

Social Media

Guests: Dr. Emmanuelle Waubant @ucsfmedicine

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD