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The holidays can be joyful – and overwhelming – especially for families caring for someone with Angelman syndrome. In this episode, ASF Family Resource Director Kathryn Ely is joined by licensed professional counselor Shannon Barlow, LCPC, to talk openly about protecting mental health during the holiday season. They discuss managing expectations, navigating grief, supporting siblings, asking for help, and finding moments of joy through radical honesty, realistic boundaries, and intentional self-care. This conversation offers reassurance, practical guidance, and a reminder that the holidays don’t have to be perfect to be meaningful.

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Learn more about Angelman Syndrome Foundation at Angelman.org.

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Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics.

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In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Connect grants database. Abby shares how her personal journey as a mom navigating the disability world inspired her to help other families access financial assistance for therapies, adaptive equipment, and more. Together, they discuss how Support Now’s all-in-one platform simplifies fundraising and connects families to thousands of verified grants, so no one has to face financial barriers alone. Whether you’re just beginning your journey or searching for better resources, this conversation is filled with encouragement, practical advice, and proof of the strength found in community.

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Learn more about Angelman Syndrome Foundation at Angelman.org.

Follow us on Facebook and Instagram and connect with our community.

Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics.

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ASF CEO Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the future of gene therapy for rare diseases like Angelman syndrome. They discuss the need for modernized healthcare policies, better access to treatment, and how collaboration across patient groups and policymakers can help make life-changing therapies available to all.

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Learn more about Angelman Syndrome Foundation at Angelman.org.

Follow us on Facebook and Instagram and connect with our community.

Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics.