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Aging with Down Syndrome

Aging with Down Syndrome

Von: Jadene Ransdell Kristin Dailey Molly O'Toole
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Join a mother, a sister, and a niece as they share honest and heartfelt conversations about the changing needs of their loved ones aging with Down syndrome. You will hear from leading experts about insights and advances in the field. You will meet professionals who are supporting individuals with Down syndrome through their senior years, and hear first-hand accounts from families who have navigated this caregiving journey. They will talk candidly about the unique challenges and joys found in this aging process, issues related to Alzheimer’s dementia, and give practical tips from lived experience.

Historically speaking, resources on this topic have been limited. Thankfully—as people with Down syndrome are living longer—more information is starting to coalesce. We hope this podcast will be a helpful resource for families and caregivers.

© 2026 Aging with Down Syndrome
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  • Molly’s Top Tips—What I Would Tell a Friend

    Molly’s Top Tips—What I Would Tell a Friend
    Feb 24 2026

    On this episode, Molly shares her personal experience with her Aunt Cathy, and advice about caring for a loved one with Alzheimer’s.

    She emphasizes the importance of:

    • Meeting them where they are and getting rid of expectations to improve quality of life
    • Decreasing stressors, because stress can be detrimental as cognition declines
    • Being present, and being in the moment, to help you find peace in the midst of caregiving
    • Joining them in activities for better engagement and outcomes
    • Joining them in their reality to reduce isolation (and to have fun!)
    • Finding the joy, because this journey can bring beautiful joys that you wouldn’t have known or experienced otherwise
    • Recognizing that caregiving can create deep and meaningful bonds
    • Knowing that you are not alone in this journey


    Resources that Molly found helpful:

    Teepa Snow https://teepasnow.com/resources/for-families-and-friends/#resources

    Be Light Care—follow her on social

    Adult Down Syndrome Center Resource Library https://adscresources.advocatehealth.com/

    NDSS https://ndss.org/resources

    Down’s Syndrome Scotland https://dsscotland.org.uk/resources/



    We want to hear from you! Get in touch at: podcast@agingwithdownsyndrome.com
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    16 Min.
  • "Home is a Place of Love"

    "Home is a Place of Love"
    Feb 10 2026

    As Jadene wrestles with planning for Matt’s future with Alzheimer’s, where he should live is top of mind. Molly and Kristin talk about where their loved ones lived, and how the onset of dementia changed those plans.


    LADD https://laddinc.org/



    We want to hear from you! Get in touch at: podcast@agingwithdownsyndrome.com
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    31 Min.
  • What the NDSS & LuMind Merger Means for Alzheimer’s Disease Research

    What the NDSS & LuMind Merger Means for Alzheimer’s Disease Research
    Jan 27 2026
    The leaders of NDSS and LuMind discuss their recent merger and its implications for the Down syndrome community, particularly in relation to Alzheimer's disease research.

    About NDSS and Lumind: The merger combines NDSS’ deep advocacy roots, community leadership, resources, and policy influence with LuMind’s expertise in accelerating research and health equity. It allows NDSS to add research as a key pillar of their work, and increase those resources to families. Moving forward, NDSS now has the expertise and structure to accelerate treatment options and innovation for the entire Down syndrome community, especially in tackling our seniors' greatest current health challenge: Alzheimer’s disease. The vision for the newly combined organization is to advance a more equitable future where every person with Down syndrome has the opportunities and supports they need to thrive throughout their lifetime. More information: https://ndss.org/lumind-joins-ndss

    More about Kandi Pickard, CEO of NDSS and Hampus Hillerstrom, President of NDSS (formerly CEO of LuMind): https://ndss.org/meet-our-staff

    LuMind https://lumindidsc.org/down-syndrome-research-in-action

    ABC-DS Study https://abc-ds.org/


    We want to hear from you! Get in touch at: podcast@agingwithdownsyndrome.com
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    27 Min.
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