Have something to share? A story, a reflection, or just a moment you needed to put into words — send it our way. Whether you want to reach out, share your experience, or tell us about your journey, this community was built on real voices. And yours is one of them. Tanya reads every message personally.

May 1st marks the beginning of PWS Awareness Month — and there's no better way to start than with the story that started it all.

In this first episode, Tanya shares her unfiltered truth. Before she could ask anyone else to be vulnerable in this space, she needed to show up first. So that's exactly what she does.

She talks about Aiden — not his diagnosis, but who he actually is. Headstrong, funny, creative, and her little sour patch kid. She talks about the years of searching for answers before his diagnosis at nearly four years old. The split second of relief when they finally had a name. And then the reality that sank in after.

She talks about what came next — the therapies, the insurance battles, the school system, the isolation, and the moments she burned herself completely out. She talks about what she witnessed in PWS spaces that made her want to build something different. And she talks about why PWS Unfiltered exists — because every family deserves a space where their full story is valid, their experience is welcome, and they never have to feel alone in what they're carrying.

This is the episode she wished someone had made when she was sitting in that moment where everything changed.

If this resonates with you — share it with a family who needs it. And if you have a story you want to tell, this community is ready to hear it.

🔗 Join the PWS Unfiltered Community on Facebook: https://www.facebook.com/groups/pwsunfiltered

PWS Unfiltered releases new episodes on the 1st and 15th of each month.

This podcast shares personal experiences and is not medical advice. Always consult your care team for clinical decisions.