Flying Through Fog: A Podcast for PANS/PANDAS Caregivers Titelbild

Flying Through Fog: A Podcast for PANS/PANDAS Caregivers

Flying Through Fog: A Podcast for PANS/PANDAS Caregivers

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When infections or other factors trigger autoimmune responses that attack your child's brain, families find themselves navigating an invisible storm. They seek out care, but often even clinicians wanting to help may not know how. Flying Through Fog brings clarity to the complex world of PANS/PANDAS through real stories, expert insights, and practical guidance.

Tune in weekly for conversations with families who've walked this path, medical professionals who understand the science, and advocates fighting for better awareness and treatment access. You'll hear from parents sharing their diagnostic journeys, experts helping families overcome insurance coverage denials, and clinicians who are in the trenches advancing our understanding of these neuroimmune conditions.

Whether you're seeking answers for sudden behavioral changes in your child, looking for treatment options, or you're a clinician looking for guidance, this podcast offers hope, community and education. We tackle the hard questions about symptoms, therapies, school accommodations, and family dynamics while celebrating the resilience of children and families affected by PANS/PANDAS.

Because when you're flying through fog, you don't have to fly alone.

New episodes drop weekly. Join our community of families, advocates, and professionals working together to raise awareness and improve outcomes for children with PANS/PANDAS.

Flying Through Fog is produced and mixed by Tommie Lee.

Beziehungen Elternschaft & Familienleben Hygiene & gesundes Leben
  • Understanding Flares: Stanford Study Research Reveals Four PANS/PANDAS Course Patterns
    Oct 21 2025
    For years, parents have been told their observations about their child's PANS/PANDAS symptoms don't match the "typical" pattern—leaving them confused, doubting themselves, and struggling to get proper treatment. But what if there isn't just one typical pattern? What if your child's unique journey is actually completely normal? In this episode, we break down a groundbreaking Stanford University study that finally gives scientific validation to what parents have been experiencing all along. Licensed clinical social worker Angela Henry joins hosts Krystal Vivian and Lindsey Forsyth to translate the complex research into practical insights families can use today. Discover why having a common language for flares changes everything—from getting doctors to take you seriously to knowing what to expect in the months and years ahead. Whether your child just had their first flare or you've been navigating this journey for years, this episode offers both validation and hope. Because when the research finally catches up to what parents have been saying, everything changes. Read the full transcript of this episode at PANDASMichiana.com.RESOURCES:Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts Claimable https://www.getclaimable.com/ PANDAS Michiana https://pandasmichiana.com/ PANDAS Physician Network https://www.pandasppn.org/ PANDAS Network https://pandasnetwork.org/understanding-pandas/ Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae ASPIRE PANS PANDAS Advocacy, Community & Support Aspire Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions Mind Global Council https://www.mindglobalcouncil.com/ OCD Family Podcast https://www.ocdfamilypodcast.com/ Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ Parenting Resources: Dr. Ross Greene https://drrossgreene.com/ Dr. Becky Kennedy https://www.goodinside.com/about/ Dr. Dan Siegel https://drdansiegel.com/ Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ See omnystudio.com/listener for privacy information.
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    46 Min.
  • Navigating Insurance Denials: How Claimable is Helping PANS/PANDAS Families Win Appeals
    Oct 7 2025
    Getting a PANS/PANDAS diagnosis is only half the battle—the other half is fighting insurance companies for treatment coverage. In this episode, Krystal and Lindsey sit down with Dr. Warris Bokhari, co-founder of Claimable, an AI-powered platform that's helping families overturn insurance denials for IVIG therapy with an 80% success rate. Dr. Bokhari shares his journey from emergency medicine in London to taking on the US healthcare system, and reveals why insurance companies routinely deny legitimate claims—often using unqualified reviewers and cherry-picked evidence. Learn the critical mistakes families make when appealing denials, discover the hidden rights you have under federal and state law, and find out why copying your CEO on your appeal letter could be a game-changer. Whether you're facing your first denial or your tenth, this episode gives you the roadmap and resources to fight back and win. Read the full transcript of this episode at PANDASMichiana.com.RESOURCES:Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts Claimable https://www.getclaimable.com/ PANDAS Michiana https://pandasmichiana.com/ PANDAS Physician Network https://www.pandasppn.org/ PANDAS Network https://pandasnetwork.org/understanding-pandas/ Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae ASPIRE PANS PANDAS Advocacy, Community & Support Aspire Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions Mind Global Council https://www.mindglobalcouncil.com/ OCD Family Podcast https://www.ocdfamilypodcast.com/ Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ Parenting Resources: Dr. Ross Greene https://drrossgreene.com/ Dr. Becky Kennedy https://www.goodinside.com/about/ Dr. Dan Siegel https://drdansiegel.com/ Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ See omnystudio.com/listener for privacy information.
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    1 Std. und 12 Min.
  • When Strep Hijacks Your Child's Brain: One Family's PANDAS Journey
    Sep 29 2025
    What happens when a simple strep infection transforms your child into someone you don't recognize? Flying Through Fog dives deep into the hidden world of PANS/PANDAS — a condition where common infections trigger autoimmune responses that attack the brain, causing sudden personality changes, severe anxiety, and behavioral issues that leave families desperate for answers. In our first episode, meet our hosts Krystal Vivian and Lindsey Forsyth. Lindsey shares the story of how her son, age 7 at the time, went from being an "even-keel" kid to experiencing daily meltdowns, irrational fears, and emotional breakdowns. She had no idea what to do — but then a conversation with a school nurse changed everything. Read the full transcript of this episode at PANDASMichiana.com.RESOURCES:Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts PANDAS Michiana https://pandasmichiana.com/ PANDAS Physician Network https://www.pandasppn.org/ PANDAS Network https://pandasnetwork.org/understanding-pandas/ Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae ASPIRE PANS PANDAS Advocacy, Community & Support Aspire Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions Mind Global Council https://www.mindglobalcouncil.com/ OCD Family Podcast https://www.ocdfamilypodcast.com/ Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ Parenting Resources: Dr. Ross Greene https://drrossgreene.com/ Dr. Becky Kennedy https://www.goodinside.com/about/ Dr. Dan Siegel https://drdansiegel.com/ Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ See omnystudio.com/listener for privacy information.
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    51 Min.
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